The MFDM Foundation
About The MFDM Foundation
Our History
In 2015, Britt, the mother of a child diagnosed with Mandibulofacial Dysostosis with Microcephaly (MFDM), felt isolated and longed for community and connection with other families who were affected by the same rare condition. This drove her to start the MFDM support group online for others to find answers and belonging. At that time, only sixty known cases of MFDM were documented, and Britt found her only link was in Australia! Eventually, four others families joined, and then the MFDM family group began to grow!
Fast forward to 2019 when our MFDM group held our first medical conference at Cincinnati Children's Medical Center (CCHMC) in Cincinnati Ohio. There were around 100 people in attendance from all corners of the globe. From that conference, families were able to connect, learn, and feel a sense of fellowship and belonging. Excitingly, from our conference, the CCHMC genetics team published a new medical report about MFDM, which notes a new number of 107 cases.
Along the way, a foundation was formed, and in September, 2023, The MFDM Foundation finally came to fruition and reached its new goal of becoming a 501(c)(3) nonprofit! Britt and the board, Melissa and Michael, hope to keep the conferences going through donations from the community.
Our Board
The Board is made up of members of the MFDM Family group. Britt, Melissa, and Michael. All three have children that have been diagnosed with MFDM.
The Work of The MFDM Foundation
In memory of Truett Palmer.
Donate to our Nonprofit
Donations to The MFDM Foundation go directly to the Medical conference or community event currently being planned.
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